So I find myself here once again. Sorry it keeps being so long but really nothing been happening that I think of being most excellent nor an Adventure.
I don't know really how to explane how the 22 year old that went out to LA 3 ish times a week became the 25 , less then 21 days till being 26 year old that can't remember the last time she was in LA.
It's funny for a while I was out seeing bands play in places every other night or every night spending a few nights each week away from home with friends living live. then one day I woke up in pain. Well that's lying i went to bed in pain. If i woke up normal that day i was to go to my friends grad party that night ( and something else in LA two nights later) but no that pain kept me in and at doctors for a few months.
What got me out? well the doctors failed to find anything any reason that i was in pain so basically told me to take pain killers ( even the strong ones didn't work but good 3 to 5 aspirin did.) and what always gets me out Hanson shows. The pain was less, and i could control it a little so i got on the road what i do best.
and that was my 08, by 09 i gave up on feeling better and really and just took my aspirin saw a fw doctors but over all gave up on my self. my health was going more down hill from 08 to the start of 09 i gained 20 pounds, from 09 to 2010 may i gained 20 more. and what always got me out still got me out hanson shows but i started to see friends less and less.
and now we are in 2010 when things took an odd turn my vision started to black out/ dim out. it was maybe 2 weeks before i was to fly out for a month to see my sister then hanson then go back to my sister and see her grad from Law school. anyways before i left it started to happen at first i didn't really notice what was going on with it, i didn't know and wrote it off.
but the more and more it happened the longer and longer the blacked out vision would be till by the time i couldn't wait a moment longer when i stood up from sitting it when dim then blacked out in my eye on top of that in the morning my eyes were really blurry and i was getting dizzy all the time. I went to a doctor who told me thank god that it didn't seem like it was my brain. which didn't even hit me that my vision diming would be my brain. but she said something most was very off and the next day i had an doctor appt at an optho to get my eyes check out who said she very lightly saw something... she almost gave up before she looked again and again and then to see if what she though was was she took photos of my eyes and yep. Papilledema a word thats not used often even this program thinks it's spelled wrong. it's swollen optic nerve.
now thats why my vision was going out but here comes the kicker you got to find out why you have papilledema it's not something that just happens on it's own, most of the time it's a tumor or something increased pressure in your skull and this time we arn't talking blood pressure but cerebrospinal fluid. aka something is wrong very wrong if you have this.
but since i was traveling i had to take that up when i got home which was the worset let me just say the doctors on the east coast by DC and boston area are much better doctors then i could find by my house or with in 30 miles of where i live in socali. and because of this i went though the ringer of finding a "good" doctor. and not only a good doctor but one that believe what the other doctors found. i went to doctors that pretty much laughed in my face saying that i had no clue what i was talking about and didn't do more then look in my eyes with there own eyes. something that i knew wouldn't find much because it took more for a good doctor to see something. so in may was when i saw the doctors in the dc area, it wasn't till July i found a doctor in socali that was worth my time and it wasn't for not trying.
At this point i was already on diamox ( it's an evil drug, takes all my calusim out of my body on top of that makes all soda taste like ass oh and there are the pins of the pins and needles that don't alwasy go away and oh the heartburn that is now gone but omg it took a long time till i could eat a real meal)
diamox is what they give you to treat what my 2nd doctor believed it was Intracranial Hypertension.
so i saw a doctor thats worth there weight and then so much more she was great she stepped everything up getting me my MRI and my CT i needed also a MRA too and told me to get off the diamox ( which was more hell then being on diamox) and they had me in for an spinal tap where a normal for an adult is under 20, ( if your fat they might allow it to 25) i was a 31. part of me really wish i could have gone back to the doctors that wasted my time and showed them that i was right i wasn't a dumb ass kid and for all there degrees i know my body better then them i might not know the right words but i know when something is right, like hey diamox works for my eyes... maybe if that works i have IH or my eyes wouldn't be getting better.
anyways i cryed though for weeks when i got the time table for all of this i was for once going to have a great birthday on july 25th i had a ticket to a sold out hanson show in pilly a city i've never been to and an opening band i already loved was playing it was going to be amazing, till tehy told me i had to wing off of diamox, and get a spinal tap on july 27th i had to say good bye to my plans and deal with the fact not only would i be stuck at home i would feel like hell while stuck at home. needless to say my famiy had a huge fight with eachother on the 25th and i refused to go out with any of them while i had a headache.
but 2 days after that and the spinal tap i felt amazing the amount of pain of the spinal tap was worth it they hit a nerve and it was so good feeling after it's amazing to know how much your body is in pain with out you knowing it.
infact i had that happen once i first started taking diamox i fastly saw that i no longer had my body hurting all over all the time my neck my shoulders my jaw my side everything felt better with diamox i didn't know how shitty i felt till i felt better our bodies are amazing that way.
anyways i started to travel again i felt better... then my great amazing doctor left. and now a few months later seeing simi okay doctors not amazing docters it's kinda going to end i'm out of health insurince come the start of next month, i will no longer will be able to have normal eye checks every 3 months to make sure it's all normal. i have enough meds to last me a while and refills thank god i'm taking the gen. diamox that dosen't cost tons. but it's worrying me oh and you know those 40 pounds i gained in two years i lost it all with in a year and i haven't worked out at a gym once somehow i think my body had something wrong with it for a very long time i'm still not thin but im back to where it all started.
so that leaves me today my 4th of july i have 21 days tilll i'm 26 and then 26 days till my health care is up.
and i just start to think of all the fights i had with my heath care the last years and i almost feel lik they should give me extra months for if they figured out that the bad headache i had june 17th 2008 and the wooshing in my ear where related i would have had years to get it under control. but instead i still have doctors that don't believe me when i can say my pressure is up because i have wooshing in one of my ears.
so i guess thats been my adventure, it's not really excellent or abnormal just different then most.
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